In 24 days, Li’l Miss will be having another surgery for her palate repair. The date: March 10, 2010.
March 2010 also marks 18 months home for her. In those 18 months, she will have endured (and I don’t use that word lightly) six procedures in the hospital that required anesthesia and stays in the hospital. One of those procedures was not successful, but the others went amazingly well including one open-heart surgery, one cleft lip repair surgery, two cardiac catheritizations (one for checking pressures and one for making a repair), one failed palate surgery … and lastly, the planned palate surgery coming up that we hope will be very successful.
I know this post is not very encouraging to someone who might be considering adopting a child born with heart defects and cleft lip and palate. But in all unveiled honesty, in the every day we don’t think about or talk about the surgeries past or future. They just are.
Li’l Miss after all is the one who has to ultimately face them and ENDURE them. And she does it so well. She amazes us with her strength and perseverance. It is no doubt God-given. He knew what lie ahead for her.
So in 24 days, we’ll do the drill. Put her to bed with as full of a stomach as we can manage. Wake her up in the middle of the night for some Pedi*sure and of course put her in our bed for the rest of the night. Make the drive to the hospital … these are usually fairly quiet. It is very hard, and The Prez and I are both sufficiently nervous by this point. Thank goodness for the radio.
Am I nervous? Definitely. She has to be off aspirin therapy prior to surgery for 2 weeks. I am very attached to her aspirin therapy, and I like the benefits of it for her. It is a risk to take her off, but we have no choice IF she is going to have the palate surgery. It is hard to even type that.
What can we expect? This one will probably be the most painful yet for her. The recovery will be intense no doubt. Have I mentioned how MUCH she loves to eat? I am just trying to not think of it. Have I mentioned lately she still has some insecurities about food (or the possibility of lacking it)? Yet we will have to limit it and I know she won’t really understand.
She has lived for 4 1/2 years with a completely clefted palate from the gumline all the way back. This surgery will indeed be life-changing for her. She has waited a really long time for a surgery that many receive much sooner. She seems to know now that she needs it and lately her open palate has just been aggravating her for lack of a better way of putting it. I am thinking this is just her way of putting her game face on. She does not know per se about the surgery, but she has been to the visits and she definitely listens in. She is VERY intuitive.
In an illogical way, I wish she didn’t have to go through it … and if I’m being completely honest … I wish I didn’t have to go through it either.
How can one dread something so much and also think it can’t happen soon enough?
And I must note that on 3/9/09, she had her cleft lip repair surgery. Do you see the pattern? 3/10/10 for cleft palate repair surgery …
Oh and about this same time, we hope to have more concrete travel dates that could potentially be in March. Life is … not boring. :)